THE EVERYDAY LIFE OF WOMEN LIVING WITH HIV IN BANDUNG CITY

Maulina Thahara Putri, Erna Herawati, Junardi Harahap

Abstract


The daily lives of people living with HIV/AIDS are often filled with challenges stemming from physical, mental, and socio-cultural aspects. Among them, many are able to face these challenges, while some struggle to do so. Women living with HIV face even greater challenges due to their gender roles in society, whether as single women, mothers, wives, or daughters-in-law. his study describes the dynamic challenges faced by women living with HIV in Bandung City. These challenges go beyond biological aspects and include the ways they confront them. The research employs a phenomenological method, with data collected through in-depth interviews and participant observation involving seven women with HIV/AIDS who are either homemakers or workers.  The findings reveal that the daily lives of women living with HIV/AIDS in Bandung are marked by issues related to their physical, mental, and socio-cultural conditions. After being infected, their physical health often deteriorates, requiring them to adapt to these conditions to maintain their daily activities. They also experience mental pressure due to the need to hide their health status because of societal stigma. Some women fail to manage these challenges and experience stress, while others successfully cope with them. Remarkably, some women manage to empower themselves and live fulfilling lives.


Keywords


Everyday life; Women; HIV; Bandung City

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References


Albrecht, G. L., Fitzpatrick, R., & Scrimshaw, S. C. (2000). Handbook of Social Studies in Health and Medicine (1st ed.). SAGE Publications.

BPS. (2024). Statistik Indonesia 2024. https://www.bps.go.id/id/publication/2024/02/28/c1bacde03256343b2bf769b0/statistik-indonesia-2024.html

Butt, L., & Eves, R. (2008). Making Sense of AIDS: Culture, Sexuality and Power in Melanesia (1st ed.). University Hawai’i Press.

Chairiyah, R., & Triratnawati, A. (2024). Phenomenology Study on Health Related Quality Of Life On People With HIV/AIDS at Victory Yogyakarta. … Journal of Health Literacy and Science, 2(1). http://ihelis.com/index.php/ihelis/article/view/19%0Ahttps://ihelis.com/index.php/ihelis/article/download/19/24

Chapman, E. (2000). Conceptualisation of the body for people living with HIV: Issues of touch and contamination. Sociology of Health and Illness, 22(6), 840–857. https://doi.org/10.1111/1467-9566.00233

Creswell, J. W. (2013). Research Design: Qualitative, Quantitative, and Mixed Approaches. Student Library.

Davis, L. J., Sanchez, R., & Luft, A. (2021). The disability studies reader. The Disability Studies Reader, 1–546. https://doi.org/10.4324/9781003082583

Deeks, S. G. (2006). Antiretroviral treatment of HIV infected adults. British Medical Journal, 332(7556), 1489–1493. https://doi.org/10.1136/bmj.332.7556.1489

Deeks, S. G., Overbaugh, J., Phillips, A., & Susan Buchbinder. (2015). HIV infection. Nature Review Disease Primers.

Efendi, F., Pratama, E. R., Hadisuyatmana, S., Indarwati, R., Lindayani, L., & Bushy, A. (2020). HIV-related knowledge level among Indonesian women between 15 years and 49 years of age. African Health Sciences, 20(1), 83–90. https://doi.org/10.4314/ahs.v20i1.13

Fauk, N. K., Asa, G. A., McLean, C., & Ward, P. R. (2024). “I Was Very Shocked, I Wanted It to Be Over”: A Qualitative Exploration of Suicidal Ideation and Attempts among Women Living with HIV in Indonesia. International Journal of Environmental Research and Public Health, 21(1). https://doi.org/10.3390/ijerph21010009

Fauk, N. K., Gesesew, H. A., Mwanri, L., Hawke, K., Merry, M. S., Asa, G. A., & Ward, P. R. (2023). Understanding coping strategies of mothers living with HIV who care for children living with HIV: a qualitative study in Indonesia. BMC Women’s Health, 23(1), 1–10. https://doi.org/10.1186/s12905-023-02299-y

Fauk, N. K., Gesesew, H. A., Mwanri, L., Hawke, K., & Ward, P. R. (2022). HIV-related challenges and women’s self-response: A qualitative study with women living with HIV in Indonesia. PLoS ONE, 17(10 October), 1–15. https://doi.org/10.1371/journal.pone.0275390

Ford, C., Chibawesha, C. J., Winston, J., Jacobs, C., Lubeya, M. K., Musonda, P., Stringer, J. S. A., & Chi, B. H. (2018). Women’s decision-making and uptake of services to prevent mother-to-child HIV transmission in Zambia. 30. https://doi.org/10.1080/09540121.2017

Handayani, W. (2018). Gender Discrimination in Education. Muwazah, 10(2), 198–224. https://doi.org/10.28918/muwazah.v10i2.1784

Herawati, E. (2017). Warga Peduli AIDS’: Community Participation in the HIV and AIDS Response in Bandung. MIMBAR, Jurnal Sosial Dan Pembangunan, 33(2), 317. https://doi.org/10.29313/mimbar.v33i2.2439

Herawati, E. (2019). Culture, Religion, and the Meaning of Volunterism for AIDS Care Citizen Cadres in the City of Bandung. Journal of Anthropology: Socio-Cultural Issues, 21(2), 132. https://doi.org/10.25077/jantro.v21.n2.p132-141.2019

Hidayana, I. (2018). Life and death with HIV / AIDS : life stories from Karawang , West Java. May.

Hidayanti, E. (2013). Coping Strategies for Women's Stress with HIV/AIDS. Sawwa: Journal of Gender Studies, 9(1), 89–106.

Imelda, J. D. (2011). Mobilizing Motherhood: case study of two women’s organizations advocating HIV prevention programs in Indonesia. August, 1–204.

Jess, M., Nielsen, S. P., Rasmussen, A., Skov-Pedersen, J., & Timm, H. (2023). Stories of a long life with HIV: A qualitative study of a narrative intervention. Scandinavian Journal of Caring Sciences, 37(3), 777–787. https://doi.org/10.1111/scs.13161

Kassie, T. D., Wasihun, Y., Aschale, A., & Ambaw, F. (2023). Lived experience of people on anti-retro viral therapy in the context of covid-19: A phenomenological study. PLoS ONE, 18(11 NOVEMBER), 1–15. https://doi.org/10.1371/journal.pone.0286292

Ministry of Health, P. I. (2023). Quarterly HIV AIDS Development Executive Report.

Kleinman, A. (2020). The Illness Narratives _ Suffering, Healing, and the Human Condition-Hachette Book Group USA (2020).

Komnas Perempuan. (2019). Policy Treatise on Women with HIV and AIDS.

Krech, D., Crutchfield, R., & Ballachey, egerton L. (1962). Individual in Society: A Textbook of Social Psychology (1st ed.). McGraw-Hiill Book Company.

Lindseth, A., & Norberg, A. (2004). A phenomenological hermeneutical method for researching lived experience. Scandinavian Journal of Caring Sciences, 18(2), 145–153. https://doi.org/10.1111/j.1471-6712.2004.00258.x

Maartens, G., Celum, C., & Lewin, S. R. (2014). HIV infection: Epidemiology, pathogenesis, treatment, and prevention. The Lancet, 384(9939), 258–271. https://doi.org/10.1016/S0140-6736(14)60164-1

P2P, D. (2022). Report on the Development of HIV-AIDS and Sexually Transmitted Infectious Diseases _PIMS_ Quarter 1 -January-March 2022. Ministry of Health.

Paudel, V., & Baral, K. P. (2015). Women living with HIV/AIDS (WLHA), battling stigma, discrimination and denial and the role of support groups as a coping strategy: A review of literature. Reproductive Health, 12(1), 1–9. https://doi.org/10.1186/s12978-015-0032-9

Pisani, E. (2008). The Wisdom of Whores. Granta Books.

Rasyiid, A. (2016). The Effect of Peer Support Group on Depression and Quality of Life among People Living with HIV/AIDS in Kediri East Java. Journal of Health Promotion and Behavior, 01(01), 32–40. https://doi.org/10.26911/thejhpb.2016.01.01.05

Safarina, L., & Melanie, R. (2020). Female stressors infected with HIV in caring for children with HIV/AIDS in the cities of Bandung and Cimahi (Phenomenology Study). STIKes MUHAMMADIYAH CIAMIS HEALTH JOURNAL, 5(2), 91–101. https://doi.org/10.52221/jurkes.v5i2.40

Salami, S., Muvira, A. A., & Yualita, P. (2021). Studi Kualitatif Strategi Koping Penderita HIV AIDS di Kota Bandung. Faletehan Health Journal, 8(01), 22–30. https://doi.org/10.33746/fhj.v8i01.243

Scott, S. (2009). Making Sense of Everyday Life. Polite Press.

Senyurek, G., Kavas, M. V., & Ulman, Y. I. (2021). Lived experiences of people living with HIV: a descriptive qualitative analysis of their perceptions of themselves, their social spheres, healthcare professionals and the challenges they face daily. BMC Public Health, 21(1), 1–15. https://doi.org/10.1186/s12889-021-10881-y

Subramoney, R. (2015). The Lived Experience of Indian Women with HIV/AIDS in South Africa: A Phenomenological Inquiry. International Journal of Health Sciences (IJHS), 3(2), 61–121. https://doi.org/10.15640/ijhs.v3n2a10

WHO. (2023). Epidemiological Fact Sheet: HIV statistics, globally and by WHO region, 2023. HIV Data and Statistics, Last accessed 14/04/2024. https://cdn.who.int/media/docs/default-source/hq-hiv-hepatitis-and-stis-library/j0294-who-hiv-epi-factsheet-v7.pdf?sfvrsn=5cbb3393_7

Wood, R. e. (2022). Being Human Philosopical Anthropological through Phenomenological. The Catholic University of America Press.




DOI: https://doi.org/10.24198/sosiohumaniora.v26i3.60303

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